Wednesday, August 20, 2014

A call for cooperation

Fear. That's what it boils down to.
In one of my last updates I told you that we're looking at ECT (shock therapy) as the next line of treatment being that my fabulous shrinky dink has "no plan b" for this last med trial. We're putting our hope in this last medication and I have several weeks before I'll see a result, if I see one at all.
Now, while I researched this treatment and introduced the topic to her several months back, I have to admit, now that it's a much more realistic possibility, I'm quite terrified.
I know that it's safe. It's been done since the 30's. It's been refined since those first cruel decades to a much more stable and comfort minded procedure. It's done under general anesthesia with a muscle relaxant to help minimize physical effects. I'm not as apprehensive about the procedure itself. I know that ECT is one of the safest and most effective treatments for medication resistant depression. I also know that people frequently feel some relief after just two to three sessions.
My trepidation is born of the known effects, namely memory loss. It's that potential that has me feeling a significant dread.
"ECT can effect memory in several ways. You may have trouble remembering events that occurred before treatment began, a condition known as retrograde amnesia. It may be hard to remember things in the weeks or months leading up to treatment, although some people do have problems with memories from previous years, as well. You may also have trouble remembering events that occurred during the weeks of your treatment. And some people have trouble with memory of events that occur even after ECT has stopped. These memory problems usually improve within a couple of months."-According to The Mayo Clinic
I have always had, with the exception of my childhood, a near impeccable memory. Not only do I rely on it heavily but so do those close to me. I am rather distressed at the possibility of losing any of it; after all, I have two kids that rely on me.
There's the memory issue, and the foreboding feeling that it won't work. After all, I have failed everything else. Why should such a radical treatment used to stave off severe depression in others work on me? All the drugs I've been on are supposed to work too...
I have such a sense of failure. Like I'm fighting a losing battle.
I know, I know, that's no way to look at it but I can't help it. That's part and parcel of the whole depression thing... An inability to look at things positively.
I'm trying, I really am. I'm trying to put my faith in the good prospects but it's difficult.
I need help friends. I need help seeing the positive.

Sunday, August 17, 2014

The results are in...

Well friends, you may or may not remember, after all, it's been almost 2 years, but I filed an ethics complaint against my 1st disability lawyer's office. After crappy to no communication throughout the application process and subsequent waiting period, they acted on my behalf to the Social Security Administration after I had already terminated their representation.
Well, I received notification today that they (the lawyer's office) were issued an admonition as a result of the investigation.
They got told they did a no-no by violating a rule or two but there will be no charges filed. No punishment.
The decision feels rather anti-climactic for me.
After The Office of Lawyers Professional Responsibility saw fit to do a full-on investigation all they deemed was necessary was a talking to? A written slap on the wrist?
Don't get me wrong. I'm grateful they did the investigation at all. After all, my complaint could have been dismissed, but I feel like the lawyer's office deserves more than just a 'shame, shame. You got caught breaking a rule.'

Anyhow....that's what I've been privy to learn today.

Wednesday, August 13, 2014

Confidence curtailed

So about a month, month and a half ago, I was feeling a little more confident and committed to begin karate again. Partly to support the little one who just made it to the big leagues in karate and wanted me to do it with her due to her own self doubt, partly for myself. I started strong and felt good about what I was doing. I believed that I could really see it through and make it to black belt.
Then the confidence disappeared and was replaced with doubt and anxiety.
I'm quite certain now that there's no way that I can ever remember the forms or the combinations.
Plus there's the whole I'm way too tired all the time, desperately just want to hide from the world issue.
Oh yeah....that.
And, there is the legitimate issue of the tremor in my legs thanks to the Ritalin (that I've stopped) that's still bothering me significantly.
So there is my dilemma. I've made this commitment both to myself and to my daughter and now I'm failing miserably in following through. I just can't bring myself to do it. The anxiety, the almost pain at the thought of getting dressed and getting out in class.
I feel absolutely horrible about it all which is not helping with the depression, as I'm sure you can imagine.
So that's me....

Monday, August 11, 2014

Let's spin again, please

Yes, you guessed it. It's medication roulette time again. And today was special. Not only because we're adding yet another med to my regimen but because it's one we had previously thought I failed. After looking back through the record my fabulous shrinky dink determined that the symptoms made much more sense coming from a different medication that we know for a fact caused other reactions.
So... we're trying Lamictal (lamotrigine) again.
I'm good with this. I have high hopes that it will bring me up and out of this damned depression. Especially since she then proceeded to look at me and inform me that she has no plan B.
~deep breath~
We're pretty much looking at ECT (shock therapy) if this med doesn't work.
Now, at the end of the appointment she mentioned another atypical antipsychotic that we might potentially consider but it's not for sure. I have a feeling that we're looking at ECT. She also mentioned TMS (transcranial magnetic stimulation) but medicaid doesn't pay for it so that's out. Plus, I may not be a candidate given my pacemaker anyway.

So that's where we're at as of today.

I hope your day was well!